Healthwatch Kingston, is trying to find out how many people in 6 London boroughs have it and how they were diagnosed.
The independent body is asking those who have had Covid to take part in an online survey, with the results hopefully ready by October.
Healthwatch Kingston’s CEO, Stephen Bitti, explains the findings so far:
Surveys can be assessed from Healthwatch in Richmond, Wandsworth, Kingston, Sutton, Merton and Croydon